Lilah's skin and allergies update

For the last year we have been battling for answers after 3 1/2 long years we now have answers on what is going on with Lilah's health.

She would have massive skin out breaks that would leave her crying and us completely helpless. But Dr. Jones came to the rescue. She scored over 100 on her ige to peanuts and will be doing OIT peanut trial in 6 months but the real issue is dermographia. She has been diagnosed with a rare skin disease that affects only 4% of the world population.

Dermatographic urticaria: also known as the skin writing disease. 

She gets these raises up welts everywhere they last as fast as they come about 30 minutes. How is the doctor treating this condition with high doses of antihistamines. She is taking three doses of children Zyrtec, antacid  ranitidine, benydryl, and vitamin D. 

It is common with children that have this disorder to not be able to absorb vitamin D the correct way Lilah had a blood test done although she takes a daily vitamin she only had 10% of what her body needs in her blood. So now she is taking 1600 IU of vitamin D to get the full value of 100% to absorb. I feel so bad for for her the massive amount of doses she has a day will hopefully lower her flare up so that she will be able to live a normal happy life. We also switched her to all natural training pants while we potty train through the night 

Hopefully we have more progress by next  week.